When I was first diagnosed with an illness, I was in high school, Poly Cystic Ovarian Syndrome. We didn't the internet back then and my doctor was more focused on talking with my Mom than helping me understand what was going on with my body. Then in 2006, I was diagnosed with the flu, shingles, and a few other things... After numerous specialists and almost two years of researching, I was diagnosed with Mixed Connective Tissue Disease, which (according to my doctors) is a combination of Fibromyalgia Lupus and Arthritis. But this time, I wasn't alone. I had support from my family and friends, as they educated themselves about my condition. I also had the group of spoonies I had met online, twitter, facebook, online chat rooms, blogs, podcasts, forums, support groups.... I wasn't alone! And that made all the difference.
Wednesday, November 7, 2012
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