The content in this blog is based on my experiences and the guidance I have received from my Care Team determined by my individual and evolving needs. Before beginning, trying, or experimenting with anything mentioned in this blog, you

Sunday, August 20, 2017

I'm a Librocubicularist, are you?

As many other knows, the emotional pain of a chronic illness is almost as bad as the physical.  So far, 2017 has been intensely difficult.  I'm working a tremendous amount, sometimes to try and distract myself to my condition.  On my days off, in an attempt to everything else - I read a lot.. usually in bed with a heating pad or an electric blanket. 

I love the escape that comes with a new book, characters who become my friends, stories that ignite my imagination and divert my mind away from my current state.  Even with my fibro fog - GoodReads helps me stay on track with not only what I have read but what I wanted to read next.

Tuesday, January 3, 2017

Friday, October 28, 2016

Extreme Fatigue





It's so much more than just being tired... And it hasn't been this bad in a very long time... it's so intense that... a visit to the doctor is in order.  

It feels like I'm struggling to walk through wet sand that comes up to my knees and I'm being forced to pull a transfer truck behind me.... 

Tuesday, August 9, 2016

Sunday, July 3, 2016

Side Effects of Diamox

A week ago or so, I had a lower lumbar puncture done to release the pressure of the build up of spinal fluid on my brain (PTC or IIH).  Apparently my pressure levels were much higher than they should have been so the Doctor changed my dose of acetazolamide - which is causing my body to expel fluids in.... a different fashion than it did previously.  Not to be gross but it gives me really bad diarrhea.  I spoke with my doctor and he said that it could be my body's way of pushing out more fluids/toxins or it could be a side-effect.  So I've been reaching out on twitter to see if anyone else taking Diamox has the similar issue.  

If you have - or even if you haven't - please hit up the comments and let me know.  



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