The content in this blog is based on my experiences and the guidance I have received from my Care Team determined by my individual and evolving needs. Before beginning, trying, or experimenting with anything mentioned in this blog, you

Monday, April 13, 2015


I seen this link on facebook and thought I would see what my name means... I do like to learn new things and continue to try and learn new things.... I am friendly, polite, and have solid values.  Pretty good guess there Mr Quiz! 

Friday, April 10, 2015


The fatigue is still present but here comes the pain... swollen joints... muscle cramps... pressure headache... I've taken it easy this week, I've drank a lot of water and rested as much as possible trying to hold off this flare... but with the changes in weather, it is happening anyway...  

No matter what I throw at my fibro, this is how they respond.... 

So I have learned to accepted them.  
I rest and hydrate, and pray until it is over.

Thursday, April 9, 2015

extreme fatigue

Ugh I'm absolutely exhausted today... its not being tired, its this bone deep extreme fatigue...  

I'm awake, showered, dressed, and at work.... and now I have to do something while I'm at the office? 

Ugh can I go to sleep yet??

Wednesday, April 8, 2015

Helpful Tip or Two

Is it just me or are most people obsessed with "life hacks"?  I'm seeing so many articles/pins about "easy kitchen hacks", "unforgettable life hacks", and even "easy spoonie hacks"!  I don't have any tips, tricks, or magic moves to make this life any easier.... But I do have a couple hints that I have found helpful along the way I would like to share with my readers. 

Tip #1:

One of the biggest things I have learned along the way is to contact the hospital, doctor's office, mall, hotel, etc and ask about any Guest Services offered.  I do this before any new appointment or any new location.  I don't mean something like fluffing my towels - but I ask about things like valet parking, guest transport assistance, etc.  If you aren't sure where to start with asking if these services are available, talk to your reception workers at the doctor's office.  Or call the mall's customer service professionals.  

I am extremely blessed that the facility where most of my medical appointments are located has valet parking (disability tags park free or your doctor's office can validate the card so you can park free) and it also has guest transport assistance (which means on those days I'm unable to physically walk to my appointment they have someone who will take me in a wheelchair).  It doesn't hurt to ask, all they can do is say that nothing of that nature is available.

Tip #2:

My other big tip is to really take the time to beef up your contact information on your doctor's in your cell phone.  I include things like the Doctor's name, number, specialty, address (in case I forget where they are located), what elevator/suite number, and sometimes the name of my favorite nurse at the office.  Here is an example of what I mean, it is for Dr Enjeti who is my Pulmonologist.  And yes, this is a real screenshot from my iphone! haha  I constantly found myself getting lost in the hospital or forgetting which elevator got me to which doctor, so by beefing up the contact information I am more prepared for each appointment.  

On good days I hate asking for help because I have to ask for assistance on bad days.  By beefing up the contacts, now I know exactly where I am going :)   

That's all I have tip wise!  Well except for the normal things... But that's another blog post.

Monday, April 6, 2015

Pinterest's Advice

Browsing on Pinterest this afternoon, I found a couple links that were interesting.  

I don't really think I would have any "Survival Guide" style advice to give anyone, at least not today. 

Wednesday, April 1, 2015

Speak up please, I can't hear you clearly...

This has been all day, so much is going on around me and I can't help but listen in.... Asthma is so bad that I can't do much talking, but my ears are working fine...

Oh my what I have learned.... 

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