The content in this blog is based on my experiences and the guidance I have received from my Care Team determined by my individual and evolving needs. Before beginning, trying, or experimenting with anything mentioned in this blog, you

Friday, October 28, 2016

Extreme Fatigue





It's so much more than just being tired... And it hasn't been this bad in a very long time... it's so intense that... a visit to the doctor is in order.  

It feels like I'm struggling to walk through wet sand that comes up to my knees and I'm being forced to pull a transfer truck behind me.... 

Tuesday, August 9, 2016

Sunday, July 3, 2016

Side Effects of Diamox

A week ago or so, I had a lower lumbar puncture done to release the pressure of the build up of spinal fluid on my brain (PTC or IIH).  Apparently my pressure levels were much higher than they should have been so the Doctor changed my dose of acetazolamide - which is causing my body to expel fluids in.... a different fashion than it did previously.  Not to be gross but it gives me really bad diarrhea.  I spoke with my doctor and he said that it could be my body's way of pushing out more fluids/toxins or it could be a side-effect.  So I've been reaching out on twitter to see if anyone else taking Diamox has the similar issue.  

If you have - or even if you haven't - please hit up the comments and let me know.  



Thursday, March 17, 2016

Happy St Patrick's Day

This song always brings a tear to my eye... 

May God give you...
For every storm, a rainbow,
For every tear, a smile,
For every care, a promise,
And a blessing in each trial.
For every problem life sends,
A faithful friend to share,
For every sigh, a sweet song,
And an answer for each prayer.

Happy St Patrick's Day Everyone.

May the luck of the Irish 
be with you all year long.

Thursday, February 11, 2016


I've never been a morning person... even less so now that I have chronic pain...  Freakin' 24*?!  You have to be kidding me....  Not even my electric blanket cheered me up this morning.

Image Credit: Matt Bellassa, the fabulous! 

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