The content in this blog is based on my experiences and the guidance I have received from my Care Team determined by my individual and evolving needs. Before beginning, trying, or experimenting with anything mentioned in this blog, you
MUST CONSULT A PHYSICIAN!!

Wednesday, November 16, 2011

Grief and Fibro

Mom passed last night, but Hospice didn't come 'pronounce' her deceased until the wee hours this morning...


I'm tired... numb... and in a hazy surreal state... mainly, I'm just tired.


Grief is hard enough to handle without my body going into a full rebellious flareup.  Hoping fibro waits until after the service to hit.



Tuesday, November 8, 2011

=(

... the night got much worse... Mom was admitted into the hospital and they are saying she only has a few days left... I know that only God knows when our time is up, but... 


Stress stress and more stress.


Please keep my family in your prayers. 

Monday, November 7, 2011

Who? Who? Who?



I need this on a t-shirt today.  Between the tests this morning making me sick (upper GI and a ton of blood work) and my fibro fog kicking in (who are you talking about? what? who?) - my day may go easier if I just pretend to be an owl.  I wouldn't mind being propped up somewhere safe, sleeping the day away...

I've had a history of not keeping meals down for a long time now, at least a few years... At the time, I was told it was a combination of my fibro and stress.  Now the doctors are not so sure anymore.  That's why I needed the upper GI done - but I got so sick during it that they had to cancel it!  I hate being sick like that in public but it was oddly satisfying... The x-ray tech was giving me one of those looks - you know the ones we get when someone thinking "yeah right you aren’t sick you are just lazy".  Except her face said "yeah right, a fat girl that can't keep food down. Funny."  So in that sense, even though it was embarrassing, I'm kind of glad that I proved her look wrong.  Then again, the hang-over feeling afterwards - I'm not so sure it was worth it.  (Secretly I will say that it was but I don't want to appear catty.) 

So all of that mess for nothing.  Then the doctor also ordered a ton of blood work (8 vials of blood!) and I don't do well once they take 4.  So I was sick again. 

<sarcasm> So far, this Monday morning is off to a "great" start.  </sarcasm>

Maybe I'll just look for a perch in a tree somewhere out back... take a nap :)

Thursday, November 3, 2011

Happy on Purpose


"Do not let what you cannot do interfere with what you can do."
 - John Wooden


I try to live each day with these words in mind.  Since the onset of my condition I have lost the ability to do some things, but there are other things I can do better now because of my experiences.  


I have always believed that things happen for a reason and that God has a plan for all of us.  While I'm not 'bragging' about my fibromyalgia lupus combination, I do feel it has made me a more compassionate patient person.  I am even more grateful for the people in my life, the small things that make me smile each day, and the time I have with those I love.


I choose to be happy and thankful on purpose.     

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